Our words are few but the wait with Medicaid is over. Family gathered at Clark's side this morning to hear that Medicaid has again, DENIED Clark's BMT. We were all silent for several moments in deep thought of "now what?" Clark looked at me and asked "what, did Medicaid deny me?" I hesitated to answer him, but found a way to nod my head yes. We are all shocked and disappointed but we aren't giving up. WE WILL NOT GIVE UP!!!
We will need to do fund raisers etc, and do them quick as all money needs to be paid up front before the transplant can happen. We met with the head of the financial department this morning. She said we need to come up with $427,225.00 to even begin and that is only an estimated cost. Clark is currently covered under Medicaid until November of 2010 so this means they are covering all his hospital stays, transfusions, etc. If we self support the finances for the BMT, then anything related to the transplant at all, Medicaid will not cover. Their reason for denial is Clark doesn't meet their criteria for approval. That he is a "rare" case and they can not support the BMT.
Clark had a good night last night. Ryan and Myls stayed with him. His oxygen level has gotten even better over night. They will continue with the same treatment for today. We are waiting to talk to other medical staff today. Meanwhile some of the family members will be heading back to South Dakota today. Huxley and I will stay in Utah to be Clark's constant companions. We are very grateful for Clark's improvements but unfortunately it won't be enough to sustain him without the BMT.
We will need to do fund raisers etc, and do them quick as all money needs to be paid up front before the transplant can happen. We met with the head of the financial department this morning. She said we need to come up with $427,225.00 to even begin and that is only an estimated cost. Clark is currently covered under Medicaid until November of 2010 so this means they are covering all his hospital stays, transfusions, etc. If we self support the finances for the BMT, then anything related to the transplant at all, Medicaid will not cover. Their reason for denial is Clark doesn't meet their criteria for approval. That he is a "rare" case and they can not support the BMT.
Clark had a good night last night. Ryan and Myls stayed with him. His oxygen level has gotten even better over night. They will continue with the same treatment for today. We are waiting to talk to other medical staff today. Meanwhile some of the family members will be heading back to South Dakota today. Huxley and I will stay in Utah to be Clark's constant companions. We are very grateful for Clark's improvements but unfortunately it won't be enough to sustain him without the BMT.
9 comments:
What can we do? Let's get the fundraisers going!! Is it possible to get a loan for the amount & then pay it back with the fundraisers, since time is of the essence?? Let's get this BMT done!Keep fighting Clark, we are behind you!! Lots of prayers,
~ Susie (Althoff) Stroup
Very good idea!! i will get eveyone i know to come out to a fundraiser and open their hearts for clark!! we can do this!
I am at a loss...again...Prayers to you all and if I can be of any help, please please let me know. Blessings to you all..
What do they expect the outcome to be if he doesn't have the BMT? Why make a judgment like that just because it doesn't fit into a box?
Your family is in my family's thoughts and prayers...I hope you can re-appeal...
I did like someone's previous idea about appealing to the national media...maybe that's something to look into?
Keep fighting Clark!!
This is ridiculous, how can people sleep at night knowing that ones life lies in there hands. I have already contacted my my Leader to see what we can do in our office and I am not stopping there. You have to much of an amazing family and if there is anything i can do wheither it be making up donation cans and dropping them off around town I would be more than happy to and will start it right away. Thoughts and prayers are with your family.
Linsey Adams
please contact me so i can help
cell-605-881-2090
Well it's a DARN good thing we don't need Medicaid in order for God to WORK! Amen??
Amen! If anyone starts a fundraiser, post it so we all know and can help out. Don't forget to tell people that they can donate by paypal through this blog!
I am speechless and so sorry Clark!But will follow your lead and keep up the fight, the prayers, and getting the word out- Stay strong and take care of yourself so you can keep fighting til you get that BMT one way or the other.
Hi Rhonda,
I'm not sure how else to get in contact with you so I thought I would try here. I'm a reporter with KELO TV in Sioux Falls and I was curious if we could discuss doing a story about Clark sometime in the near future. Please give me a call when you have a chance. Thank you and I am praying for you and your family.
Erica Johnson
ejohnson@keloland.com
605-360-4706
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